Why am I writing this blog?
- Craig Farnsworth
- Euclid (Cleveland), Ohio, United States
- Here I share the amazing spiritual journey I began on July 19, 2007. I received the diagnosis of a golf-ball-sized tumor on top of the left parietal lobe (motor functions) of my brain. I had severe symptoms all up and down the right side of my body and had received an MRI scan of my brain. In August 2007, I learned that my diagnosis was a Glioblastoma Multiforme (GBM). This is a common form of fast-growing brain cancer with a challenging prognosis. That's the external story about that moment in time. In the spiritual world I found (actually more like it found me) what I came to call the Fact-Based Spirit-Guided Path, and I began an amazing journey. After October of 2008, I lost the use of my right arm, and in early 2009, my cognitive abilities were struggling, and treatment options ended. My wife, Susanne, then began doing most of the blog postings, with my review and input whenever possible. I continued to apply the Fact-Based Spirit-Guided Path as the adventure continued. My soul then flew to the Kingdom of God on July 1, 2009. Thanks for your interest in my journey. Craig
Susanne's Perspective
Friday, August 28, 2009
Honoring Our Marriage on Our Anniversary - August 28, 2009
Thursday, August 13, 2009
Susanne’s New Blog – August 13, 2009
You can subscribe to receive postings via email or simply check the blog on occasion. The link to Susanne’s Boat Ride is www.myboatride.blogspot.com. You’ll have to read the first posting to know why I picked that name!
Love,
Susanne
Saturday, August 1, 2009
Michelle's 1-Month Tribute to Her Dad, August 1, 2009
We decided as a family to end blog postings for Craig's blog, but sometimes there are worthwhile exceptions! For those who are wondering, I'm doing well...having a granddaughter on July 16th helped! My emotional experience is much like Craig's daughter Michelle describes below...except that I also have the "practical triggers" of emotion going on while doing thank you notes, reading condolence cards, and handling the myriad of details of completing the affairs of someone's life. Craig's bedroom is now back into being a prayerroom and is far more special for his time spent in it. I'm grateful for the comfort of having his soul nearby. I hope you'll appreciate Michelle's reflections.
Love, Susanne
Reflections on the life and death of my dad
It’s the one month anniversary of my father’s passing and I had the bounty today of reliving the whole story for a dear friend of mine, and decided that it was time to write about my experience for myself and anyone else for whom this will touch.
I will start recounting my journey by saying that I am comforted by my belief/certainty that my dad is not gone – he is just in another spiritual world, but that (as I tell my daughter) he can still see me with “special eyes”. Therefore I still have my father – I will just have him in a spiritual sense until I join him one day in that other world. It is hard to realize that I won’t see him physically, and that will always be painful (especially at significant occasions, or maybe just silly or inconsequential ones..) but I have to say that his death was such a blessing…a blessing to have had the healing time we all needed in our relationships with him and each other, a blessing to have had him as a father, a blessing to have been with him at his deathbed while he moved to the next world, a blessing that he did such an amazing job of dying…
This is not something that we tend to talk about – dying well. But since all of us have to do it at some point or another, we might as well do it well. And my dad did, and his journey to this point was incredible.
As you probably know my dad was diagnosed with cancer a few years ago and journeyed well with it (he refused to call it a fight because that denotes a struggle/war and he was peaceful by nature). He was strong, courageous and radiant through the whole process. He spent MANY hours in prayer and meditation and was content with God’s plan for him. I use the word content when describing him many times and what I mean by it is not happiness (who actually is happy to leave behind one’s loved ones?) but a inner serenity/calmness/peace that God will provide and protect him and his loved ones. When word came from his doctors in February that there was nothing more they could do, he was content and spiritually radiant. Of course he was sad, sad for what he would be missing here: being with his children, seeing his grandchildren grow up, having more wonderful years with his wife, being able to have more years of service to others (something that always gave him great joy). But since the verdict was given he was determined to die well.
Many times people die with things unsaid, unresolved, unfinished. My dad (and all of us) had the opportunity to say what we needed to say, resolve things that were not, and finish every thought, emotion, and story. In the months after my dad’s prognosis was considered terminal, he went through a spiritual transformation – something that he had always yearned for. He had always yearned to feel close to God, to feel in His embrace, to express himself emotionally and spiritually to those around him – yet he always felt like he got in his own way. He had a hard time expressing his feelings and never truly felt the connection to God the way he wanted to (even when on spiritual pilgrimage to the Baha’i Holy sites). In the remaining months (we had about 5 months with him as he was dying) he was finally able to express what he wanted to, he became physically affectionate (the first time in my life that he stroked my back or freely held my hand), much freer in saying “I love you”, “I’m sorry”, and “I’m proud of you”. These last two were for my brother who had been estranged from my father for many years. They were finally able to make amends and truly love (or at least finally express the love they always had) for each other after 15 years of misunderstanding and pain. This healing was so important to them and to all of us – and my dad made sure to make it happen. Each of us in our turn (my sister and I, my mom and others) also spent time clearing up old issues, forgiving him for past things (no parent or spouse is perfect), asking for forgiveness for things we had done, etc… There were many tears but at least we had the chance to do these things while he was still with us. And that forgiveness allowed me to truly let him go when the time came…
Many people become bitter, depressed and sad in their final time here on earth, but he was determined to die with “his eyes wide open”. Spiritually he was so radiant and content in his final months, weeks and days. At a special “going-away” party that we held for him where 300 people attended, he was the one consoling everyone who came to see him. He was content, he was thanking them for all the things they had done for him over the years, he said he would miss them and would pray for them from the next world. I cannot really explain it because it seems so surreal that he would be so calm, in a world where people fear death or can’t bear to think of it. But he knew that he would not be going into oblivion, he would be in the next world, which as Baha’is we believe is as close to us in this world, as we are to a baby who is still in the womb. He would not be able to physically touch or speak to those whom he loved, but he would be near and reunited when they joined him in the next world.
In his final few months he increasingly lost his ability to walk and speak (the effects of the brain tumor) but his eyes still sparkled. He did everything he could to not be a burden on others (though of course he was dependent on us (mostly my step-mom) for care). He would get frustrated, especially when we would try to get him into bed, help him eat, etc.. (things he’s been able to do since was a child!) but he would never take it out on anyone or really get grumpy. His greatest frustration came from not being able to express himself in words anymore (now that he had gained the ability to finally express himself!) but as his speech diminished, the expressiveness in his eyes got stronger. Until finally on his deathbed his eyes were the only way he could communicate.
In his last week he had chosen to stop taking his medication and to stop eating – this is not uncommon for someone who is nearing death as they lose interest in these things – and my step-mom honored his request (which must have taken great courage/detachment on her part!). A few days later it seemed that his hours were numbered and all of us kids assembled (I drove in from Dayton, Ohio, my sister from Washington DC and my brother lived locally). When I came into the room I remembered being struck by two things 1) how still his body was (he was not able to move any of his body anymore) 2) how expressive his baby-blue eyes were. He was clearly with us and was very “present”. He was not agitated, he was not in pain, he was – as always - content. I was very sad when I saw him – it is very tough to see a parent (especially one who is so young) in such a state. I held his hand and cried for a long time.
We (myself, my sister, step-mom and another dear friend) ended up having the bounty of being with him for 2 days and were there at the amazing moment when he passed. It was such a spiritual moment though physical all at the same time. It was as if we could feel his soul moving on, while we were there to hold his hand and cry, and sing him to the next world (his greatest joy was music!). I feel blessed to have been able to “birth” him into the next world. I was originally worried that I would have a hard time of it. I’ve never been near someone who is dying nor had to deal with death much in my life. But being able to serve him in those two days was such a blessing. I sat with him, sang to him, held his hand, prayed with him, laughed with other people who were caring for him, wiped his forehead. And he died with a smile on his face…
I will always miss him and will always keep his memory alive by telling stories about him to my kids. About how he would sing every day, how he played the guitar, flute, dulcimer and recorder. How he was always generous with his time, energy and resources. How he showed his love through his actions and would always do everything he promised to do. How he was watching his grandchildren grow up from the next world and that he loved them and were proud of them. That he was always working towards creating unity between people, creating positive relationships, creating better communities. How, as his headstone says “He lived to serve.”
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In this last month since his passing, I have been doing better emotionally than I expected – in fact, it seems that some of my dad’s contentment has rubbed off on me. Not all the time though: I have times where I am sad, where I cry, when I am upset about what we won’t get to see him at (my daughter’s next birthday, my sister’s wedding). But on the whole, when I think back to those last days and hours with him, I am happy. Sometimes I feel guilty saying that, but if this journey allowed my dad to have the spiritual transformation he always wanted, the healing our family needed for so many years, and the blessing of peacefully helping him into the next world, then why shouldn’t I be happy? Death has to happen to all of us, and his could not have been more amazing or more of a blessing for those he loved. True happiness is spiritual and all of our family (now in two different worlds) have been blessed with what we needed for our spirituality and personal growth. And when it comes down to it, the spiritual life of our souls is what matters in the long run, long after our physical bodies return to the earth.
I know my dad will always be with me and always loving me and my whole family. I miss you Dad...
Michelle (Farnsworth) Tashakor
Tuesday, July 7, 2009
Graveside Service – Lake View Cemetery – July 3, 2009
Craig and I had not particularly planned the graveside service other than choosing Dustin Dornbrook to read the Bahá’í Prayer for the Dead. When it became clear that there would be close relatives unable to attend the funeral and only be at the graveside service, I delegated planning of the service to Michelle and Leah. They asked people to sing and play music, which was beautiful. There were additional prayers/comments offered spontaneously as well. A number of friends were also able to be there who had missed the service the night before.
I had a few moments of private farewell at the casket at the end. We all chose to leave before the burial…enough images in my head without that one added as well. You can see photos of beautiful and historic Lake View Cemetery at this link: www.lakeviewcemetery.com.
The video recording of the graveside service is attached at the end of the one of the funeral service, if you wish to watch it. Go to www.dejohnfuneral.com and click on Craig Farnsworth’s name. The video is under the Memories link.
As far as I’m currently aware, this posting is the completing one for Craig’s blog. It’s been a blessing to be in touch with so many people globally through this medium. Your prayers and spiritual/emotional support have meant so much to us. Watch in the future for our book on empowered ways to journey with cancer. Please keep me and our children in your thoughts and prayers as we go forward.
Love,
Susanne (susanne@marriagetransformation.com)
Monday, July 6, 2009
Honoring/Funeral Service Day, July 2, 2009
A team of people began doing setup at 3:30 p.m. at the Slovenian Society Home where we had rented a hall for Craig’s Honoring Service. He didn’t like the word “funeral”, even when I pointed out that the word “fun” was in it! Since our focus was on honoring him as a person and his service accomplishments, “Honoring Service” was what we chose to call it. I was so grateful to have trustworthy friends and family doing those tasks so I could relax and not arrive until time for things to begin at 5:30 p.m. Craig, I, and the kids had decided not to do a formal receiving line. However, there was often a line that formed near me when I stood still! It was wonderful to greet so many dear friends.
Knowing that I would not be able to write effectively about Craig at the time of the end, I began writing my tribute to him months ago, read a draft to Craig then, and then edited it every now and then since. Members of our Toastmasters group greeted me before the funeral (they had canceled the meeting that night to be there), and I admitted that I hadn’t practiced my “speech” out loud or memorized it. They assured me no one would be evaluating my grammar or delivery that evening! Here is a link to the document of what I said: www.claricomm.com/SpouseTributetoCraig.pdf
Craig’s three children did a tribute to their Dad – with eloquence from the heart and many tears. We went through the family photos months ago, and they put together a wonderful slide show to display to everyone after they shared. (You can see it on the video – see details below.)
Craig’s best friend Nik Tressler had been working on his tribute to Craig for months as well. He had the opportunity to read it to Craig on one of his many visits to our home. I really acknowledge Nik for being open with his love for and grief about Craig. He arrived at the lectern with a roll of paper towels in hand for his tears! You can read Nik’s tribute to Craig at this link: www.claricomm.com/FriendTributetoCraig.pdf
At the end of the service, the pallbearers carried Craig out. Unexpectedly, the funeral director invited me to accompany them down the aisle – yet another difficult “good-bye”. I wrote a note to myself the following morning: “How many times and in how many ways will I have to say good-bye to him?”
The funeral home is testing a new service of taping and webcasting funeral services. Since this option is new for them, they offered to do Craig’s for no charge, and Michelle and I instantly agreed. With close family and many friends unable to attend due to pregnancy, short notice, and it being a holiday week, we were grateful to offer this and thereby include more people in viewing it and reaching “closure” with Craig’s passing. There is a link on the funeral home’s webpage - www.dejohnfuneral.com - to information about Craig and his honoring service and graveside service that will be available for quite a while. For only the next 90 days, however, you can watch a video of the funeral/honoring service and graveside service. Craig Farnsworth’s name is listed on the home page, and you link to all information from there. The written program is at the View Obituary/Notice link and the video of the service is at the Memories link. Please advise the funeral home or their video service if you have any technical difficulties (in other words, not me!)
The service began at 7 p.m. and was followed by refreshments, so it was around 11 p.m. by the time Holly and I got home. Michelle and Leah dropped off memorabilia and other things by midnight. So, Holly and I got into bed by 1 a.m. A very late night! But a blessed service for all of us.
Love,
Susanne p.s. Bless my computer support folks who have been teaching me how to do multiple complex maneuvers on the road that are allowing me to do this stuff from Mom's in Canada! Yay!
Sunday, July 5, 2009
Preparation Day – July 1, 2009
I had done an extensive notification matrix, so we all began making the calls and sending the emails to let people know what had happened. With the funeral scheduled to happen in only about 36 hours so that burial was completed promptly (encouraged for Baha’is since we don’t embalm and because of the July 4th holiday), our pre-planning was a huge benefit.
Michelle (Craig's eldest daughter) and I only needed to have a brief meeting with the funeral home to finalize arrangements. The facility was on standby and then ready to go (the funeral home wasn’t large enough, so we had to rent a hall in the community). We already had the program created, so it just needed quick editing. Friend Janet Lyon was the logistics coordinator and already had an extensive team of people lined up to do refreshments and facility setup. I had the memorabilia for display collected and organized. We knew where to copy the handout of the program and which two people there knew how to fold and staple it properly. Craig had chosen all the participants, so we just needed to confirm their availability and willingness. All of us responsible for doing tributes as part of the program had already completed preparing them. There were enough last-minute things that came up to keep us busy in the middle of our exhaustion, that we were very grateful for Craig’s and my foresight in planning ahead.
A few posts ago, I mentioned a quotation that included the concept of things lining up in the hours of waiting. By the time Craig passed, almost everyone that he had designated to do primary tasks was available to participate…something that had not been true in the days and weeks prior to July 1-2. Nor would it have been the case by July 3-4.
It is a Bahá’í practice to have a ceremonial body washing and preparation for burial done by close friends and family, and we did this for Craig in the evening. After the morning experience of seeing his body leaving, I had very mixed feelings as I headed to the funeral home. The men who agreed to help me were Nik Tressler, Rick Eastburn, John Cunningham, and Ban Twaddell. Of the five of us, only Rick had done this before! But, everyone turned out to be wonderful companions for Craig and I in this process. I had read some general instructions and gathered the appropriate materials months before, but this was a very new experience. We prayed before entering the room and prayed before we began. I played some of Craig’s favorite music on a CD player. It was possible for me to participate in the washing, but I chose not to. The guys carefully and respectfully washed him head to toe. The funeral home had already shaved him, but the guys also shampooed his hair, and I dried it. Over recent weeks, his hair grew longer and very curly, and I cut a lock of his hair to keep in a pouch that our friend Cindy Hall sewed for me for that purpose.
After the washing and drying, I placed a gold ring on Craig’s right ring finger that was engraved with: “I came forth from God and return unto Him, detached from all save Him, holding fast to His name, the Merciful, the Compassionate.” (Photo at: http://www.bahairesources.com/products.php?id=3140 ) Rick took attar of roses (rose oil) that he has carried to various holy places in the world and sprinkled some on Craig’s body. We then needed to shroud his body, which is essentially wrapping it in cloth. I could use silk or cotton and chose cotton, which seemed more a match for Craig. I chose to use royal purple king-size sheets that matched the amethysts in our wedding rings. Cindy had taken the pillowcases and cut and sewed them into ties that we used to then wrap around Craig to secure the shroud and Craig’s arms crossed over his chest in place. Craig wanted to be buried with his prayerbook that contained petals from the Shrine of Bahá’u’lláh and a few other special items, so we tucked it inside the shroud. I pinned my “I Love My Husband” button to secure the flap of cloth on his shoulder. Rick sprinkled more rose oil on the shroud. We ended with a further prayer followed by song with me holding my hands on both sides of Craig’s shrouded head. I had invited Nik to lead us in song, but he was too emotional to do so. I then led us all in singing a Bahá’í prayer: “God Sufficeth”. At the end of singing, Ban began to laugh, and explained that often over the years Craig’s friends (usually tenors) got into difficulties singing when they asked Craig (a bass) to lead the singing. They had the opposite problem with me leading! Good thing I’m alto and not soprano!
I left the funeral home feeling so much more peaceful and happy than I had in the morning. Our friend Melodie Yates spent the night with me (the kids all moved over to be together at Dave’s home). She assured me that I didn’t need to automatically wake to check on Craig but to delegate “caregiving” duties to her. I was able to sleep 7 straight hours…what a blessing.
Love,
Susanne
The Final Stretch – June 30-July 1, 2009
We had occasional times of men visiting Craig and being with him for periods of time during the day or evening, including Craig’s son Dave. However, at night it was women accompanying Craig. We referred to ourselves as midwives (Michelle, Leah, Holly, and I) and it felt very much as if we were creating Craig’s room as a warm, loving, caring space for him. We stroked his head, massaged his feet, held his hand, put cold cloths on his forehead, adjusted his covers and pillows, and saw to his comfort as much as possible.
As you know, we stopped giving Craig morphine on Monday evening. He stayed essentially pain free in his head from then on. However, on Tuesday evening various issues began to arise. He seemed to be having more active seizures/tremors happening that caused him to be reaching for his face and head and potentially hurting himself. His legs and hips were more restless. We had Tammy, one of the on-call hospice nurses come to the house to help us assess how to ensure Craig was safe and as comfortable as possible for the night.
Tammy helped us pad all around Craig with towels, sheets, and blankets. We put a thick comforter on the floor in case he had a seizure bad enough to fall out of bed. We put a sock on his hand to protect him from scratching his eyes. She gave us normal saline to gently put in his eyes, as dehydration had left them dry. She gave us swabs for his lips and mouth to soak in his favorite liquid (Mandarin Orange Spice tea). We then met as a team to discuss how to handle the nighttime issues that could arise, how to recognize signs of death, and what to do when he passed. We then felt more confident and empowered by having specific tasks to do.
As Tammy was finishing up, we received a telephone call from Debbie Boyd-Tressler, who had been intuitively communicating with Craig. As you know, we had backed way off from interacting with Craig the previous night – little touch, very quiet, and so on, even though his eyes were often open. We were concerned about interfering with his process of letting go of this world. Debbie shared with us that there was nothing we could do that would interfere with his process, that he was filled with joy, and that whatever would make us happy was great for him. So, we touched him, played music, sang, prayed, and interacted with him all night! What a joy!
Once Craig had fluid in his eyes, he stopped reaching for them. We figured out that his hand was reaching for his head because his hair hadn’t been washed since Sunday morning and his head was itchy, so Michelle used the no-rinse shampoo and got his head clean and “scratched”. He then calmed down and quit reaching for his head. His auto-adjusting air mattress had been deflated since the power outage, and sciatic pain was reoccurring (he hadn’t wanted the mattress turned back on). Once we got it restarted and pain ointments rubbed into his back and hip, the leg and hip restlessness stopped. The major seizures we expected at the end did not happen, and all our ministrations calmed his whole body down. It was an amazing experience in effectively reading and responding to his body language!
I had a long stretch of hours with Craig by myself. As his breathing began to change around 4 a.m., I woke up Holly and then the girls and we spent a couple of hours with him praying and playing music. We put on the CD of Craig’s music and sang along with it. Kim Klein, our primary hospice nurse came in before her shift at around 5:30 a.m. and checked him. She had to leave at 7:30 a.m. for a staff meeting and told us that it would still likely be a few hours. So, the girls and I went to bed for a bit and left Holly at his bedside.
Around 8:30/8:40 a.m. Craig’s sister called and woke me, so I checked on him and was assured he still was “stable” and not yet exhibiting the end-of-life signs and so went back to bed. Within minutes, I was called to immediately come to Craig’s room. Instead of a gradual stopping of breathing, his heart and breathing seemed to simply stop, and we noted his passing around 9 a.m. We also noted how appropriate it was that he died on July 1st, Canada’s independence day, since I was born and raised there! We then spent about 30 minutes praying and saying our goodbyes. We called the funeral home and Kim to come. Craig’s son Dave headed over to the house to have his time to say goodbye. He had been in to visit each day but left the night shifts to us. He arrived expressing how happy he was that his Dad was now free.
Love,
Susanne