Why am I writing this blog?

Euclid (Cleveland), Ohio, United States
Here I share the amazing spiritual journey I began on July 19, 2007. I received the diagnosis of a golf-ball-sized tumor on top of the left parietal lobe (motor functions) of my brain. I had severe symptoms all up and down the right side of my body and had received an MRI scan of my brain. In August 2007, I learned that my diagnosis was a Glioblastoma Multiforme (GBM). This is a common form of fast-growing brain cancer with a challenging prognosis. That's the external story about that moment in time. In the spiritual world I found (actually more like it found me) what I came to call the Fact-Based Spirit-Guided Path, and I began an amazing journey. After October of 2008, I lost the use of my right arm, and in early 2009, my cognitive abilities were struggling, and treatment options ended. My wife, Susanne, then began doing most of the blog postings, with my review and input whenever possible. I continued to apply the Fact-Based Spirit-Guided Path as the adventure continued. My soul then flew to the Kingdom of God on July 1, 2009. Thanks for your interest in my journey. Craig

Susanne's Perspective

During this entire journey, my wife, Susanne, had an entirely different kind of experience. Initially she added comments to some of my posts describing her experience of the moments I discussed and offerred perspectives on our relationship. In the latter stage of this journey, she is writing the blog, as I am no longer able to do so. I am truly delighted that she is doing so. Susanne and I work together as marriage educators/relationship coaches and she has written many books on preparing for and strengthening marriages so you can count on her comments to be insightful and poignant.

Monday, November 12, 2007

Craig's Diet

Craig has mentioned his diet often enough that people are asking me to post some particulars!

We began with a diet from the Block Center for Integrative Cancer Care up in Evanston (Chicago), Illinois, where we visited in September. Some of their advice has become part of our routine, and some of it we have set aside or supplemented/adjusted in consultation with the dietician at University Hospital. Please keep in mind that diet is often very individual – people have illnesses, allergies, and tastes that vary, so please don’t just adopt our diet, particularly if you have cancer, without consulting with a certified dietician or other professional. Note: For the most part, I’m eating exactly what Craig is…and it’s helping me stay healthy as his caregiver!

It is also important to note that Craig’s ability to follow this diet has been significantly linked to his ability to avoid being nauseous during the chemotherapy and radiation. He was on pills, not IV chemo and was allowed to take it two hours after eating. Not taking it on a totally empty stomach helped. Visualization and prayer were also key assistants.

Major parts of the diet we are following:

* Choosing organic food whenever possible, especially fruits and vegetables

* Using whole grains and whole grain products (oats, rice, wheat, quinoa, millet, barley, flax)

* Increased intake of vegetables, including onion and garlic (we have recently cut back on garlic due to Craig’s bloodtests – it is an anti-coagulant); tomatoes daily

* 4 to 5 servings of fruits per day

* Approx. 100 grams of protein daily, particularly plant-based sources (lentils, beans, seitan, whey, soy (limited), white chicken, some fish, tree nuts—cashews, pecans, walnuts, pine—and seeds (sunflower, pepitas/pumpkin seeds), organic eggs (no peanuts or peanut butter or red meats); we do a protein shake for breakfast most mornings along with our food

* Sprouted/whole grain bread

* Limited fat intake; no margarine, very little butter; little olive oil

* Limited fruit juice

* Very limited dairy products; using rice, soy, almond, and oat milk substitutes

* Green tea (recommended to drink 2-3 cups daily; Craig is only drinking 1 and I’m drinking none)

* Very limited sugar intake; using Agave and Stevia or nothing; little honey

Parts we are not following:

* Wild/freshwater/coldwater fish (has been very difficult to obtain)

* Sea vegetables (we tried them but really don’t like the taste!)

When we realized that Craig’s red blood cell/hemoglobin/hematocrit counts were low, the nutritionist at University Hospital helped us to figure out what counted as iron-rich foods. She told us that for the iron to absorb, we needed to then accompany the food with something containing Vitamin C. So, the iron-rich foods that we increased were:

* eggs, pumpkin seeds, lentils, walnuts, parsley, spinach, sweet potatoes, raisins, oranges, and blackstrap molasses

For the Vitamin C, we include citrus fruit, tomatoes, peppers, berries, cantaloupe, or leafy greens.

When Craig’s platelet count dropped, I began to get a bit frustrated…there does not appear to be any nutritional recommendations to increase platelet count. Platelets are formed in the bone marrow and stored in the spleen. Those are both kept healthy by exactly the foods already in Craig’s diet! Weight-bearing exercise also helps the bones/marrow stay healthy, so we are walking. And, I’m doing an energy flow on Craig (Jin Shin Jytusu) that could help the spleen release more platelets. This challenge is more up to prayer and Craig’s visualization though. The decrease in his chemo amount and the chemo ending on Nov. 12th will help too.

Susanne

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