Why am I writing this blog?

Euclid (Cleveland), Ohio, United States
Here I share the amazing spiritual journey I began on July 19, 2007. I received the diagnosis of a golf-ball-sized tumor on top of the left parietal lobe (motor functions) of my brain. I had severe symptoms all up and down the right side of my body and had received an MRI scan of my brain. In August 2007, I learned that my diagnosis was a Glioblastoma Multiforme (GBM). This is a common form of fast-growing brain cancer with a challenging prognosis. That's the external story about that moment in time. In the spiritual world I found (actually more like it found me) what I came to call the Fact-Based Spirit-Guided Path, and I began an amazing journey. After October of 2008, I lost the use of my right arm, and in early 2009, my cognitive abilities were struggling, and treatment options ended. My wife, Susanne, then began doing most of the blog postings, with my review and input whenever possible. I continued to apply the Fact-Based Spirit-Guided Path as the adventure continued. My soul then flew to the Kingdom of God on July 1, 2009. Thanks for your interest in my journey. Craig

Susanne's Perspective

During this entire journey, my wife, Susanne, had an entirely different kind of experience. Initially she added comments to some of my posts describing her experience of the moments I discussed and offerred perspectives on our relationship. In the latter stage of this journey, she is writing the blog, as I am no longer able to do so. I am truly delighted that she is doing so. Susanne and I work together as marriage educators/relationship coaches and she has written many books on preparing for and strengthening marriages so you can count on her comments to be insightful and poignant.

Wednesday, August 20, 2008

Craig had a calm day in ICU, where he will likely stay at least until tomorrow. There have been no seizures since the surgery ended, thank God! So, they disconnected the EEG brain monitoring device and removed all the wires from his head. They also removed the oxygen tube from his nose and the drainage tube from his head, so he's much more comfortable. Just IV's now in his arms. I saw the incision today. Still the perfectly carved "C" on his head plus a row of staples on an extra incision to relieve pressure on the skin. I sat with him from 10 a.m. to 6 p.m. or so, and he napped off and on and chatted, so he was coherent and relatively alert. The drugs are making him a bit dopey, and the constant interruptions from the staff made it difficult to do his usual serious napping. He's struggling being one-handed and left handed, so I fed him lunch and dinner. He ate every bite. I was able to work with the nurses for them to find a phone Craig could use to call his son David to wish him a happy 30th birthday, but there's no way for others to call him until he's moved out of ICU. He tried to read, but concentration was difficult, and holding the book and turning pages one-handed was too tough to manage today.
The best news of the day is that Craig has full sensory feeling down his right side...if you touch his skin, he can feel it everywhere. The signals from his brain to his arm and leg are generally not happening smoothly (he tries to move things and nothing happens), but he moved his shoulder once, his arm/hand once, and after I massaged his leg and foot, he was able to wiggle his toes a few times. So, definite signs of life. Yay!
I swam this morning at the Y and got some editing and reading done while Craig napped (our book Pure Gold is due in edited version to a Korean publisher in September, so editing it is my hospital sitting around project!). I left after dinner so I could come home to rest. We'll now see what tomorrow brings... Susanne

2 comments:

Susan said...

The good news is certainly welcome! I'm glad he was able to speak with his son on the phone too. Maybe with most of the tubes removed he'll be able to get some decent napping in. Both of you are in my prayers and thoughts and heart.

Cheryll said...

Gasp! Prayers and hugs from Wade, Enid and Cheryll