Monday afternoon (September 24) we met my mother and cousin, Ann, and her partner Pat for lunch. My mother was in town visiting a long time friend and my cousin was in the area visiting her mother, who is in a nursing home in Oberlin. It was a delightful and needed break from ongoing medical appointments.
I got back into the swing of some of my civic activities, which felt good:
1. For the local Bahá’í community, I am part of a team that coordinates local activities. The group met Monday evening, and I was able to participate for the first time since June.
2. I also serve on a committee for the city of
3. Our local neighborhood association met Tuesday evening. They had sent me a fruit basket when I was in rehab, and the president had prepared several dinners for us. They were pleased to see me. I encouraged them all to attend the October 20 meeting.
On Tuesday (September 25), I had my final pre-radiation/chemo bloodwork and checkup done, and Dr. Nock declared me to be in fine shape. He also willingly worked with us in looking forward and scheduling treatment around leaving Thanksgiving open to be with family and part of December open to travel to
Wednesday evening (September 26) I experienced my first hypnotherapy session that was structured to support the plan I describe on this post. This was done by my good friend Dan Clark, who provided the Energy Healing session described on this post. The National Institute of Health (NIH) recommends this type of treatment to assist people to eliminate or reduce side effects from treatment, and I expanded its use to also create powerful healing and cancer elimination during treatment.
This is a good to time for an update on the facts from the Fact-Based Spirit-Guided Path I have been on since July 19:
- You may recall that the incision became infected, so further surgery to clean out the infection was carried out on August 28 (Susanne and my 8th wedding anniversary). The surgeon deemed the wound to be fully healed and infection-free on September 26. This allows radiation to begin.
- Preparation for radiation and chemotherapy have been completed and treatment will begin on October 1. This is a picture of me in my radiation mask. There will be 2 phases to the treatment:
- A 6 week period of combined radiation and low level chemotherapy, which have been found to be the most effective for my Glioblastoma Multiforme diagnosis. The radiation will require trips to the hospital Monday through Friday for an 11 AM treatment of about 15 minutes duration. The chemotherapy will be a pill that I take 7 days a weak an hour before the radiation or at the same time on weekends.
- A 12 month period of a week per month of a stronger dose of the same chemotherapy drug.
- You may also recall that, following the initial surgery, the front shin muscle (anterior tibialis) for my right foot was unable to function. This resulted in a condition called “drop foot” because I could not raise my foot as I walked. The rehabilitation therapy, home exercises, and an anti-inflammatory herbal remedy (started when I sprained the right ankle on September 6) have successfully restored nearly full movement to that muscle. The right leg is still weak, however, so therapy and exercises are continuing.
- The doctor’s have cleared me to return to work on a part-time basis. I am developing a plan with my supervisor to work, largely from home, as I feel able to do so around medical appointments and treatment.
1 comment:
The rest of the story…
Three days without medical appointments was heaven! It was so good to spend the time with Nik and Deb.
Some days I feel as if I’m living out my life in doctor’s waiting rooms (or having scary moments like seeing Craig strapped to a radiation table in a mask!). Hospitals, in particular, seem to suck the life out of people…me and everyone I observe in the area. This is so strange when they are supposed to be a healing environment. Appointments often interfere with normal meal schedules, and people take us into enclosed boxes of rooms with no access to sunlight or nature…anything to suggest life.
So, in between, we are doing our best to be out in nature, out with friends, and finding some level of normalcy in functioning. My plan is to also be back working part time once Craig’s radiation treatment begins. Other people will be driving him to many of his appointments, so this will help give me the space to both write and also to do some self-care…like maybe get to an occasional yoga class down at the Gathering Place.
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