Why am I writing this blog?

Euclid (Cleveland), Ohio, United States
Here I share the amazing spiritual journey I began on July 19, 2007. I received the diagnosis of a golf-ball-sized tumor on top of the left parietal lobe (motor functions) of my brain. I had severe symptoms all up and down the right side of my body and had received an MRI scan of my brain. In August 2007, I learned that my diagnosis was a Glioblastoma Multiforme (GBM). This is a common form of fast-growing brain cancer with a challenging prognosis. That's the external story about that moment in time. In the spiritual world I found (actually more like it found me) what I came to call the Fact-Based Spirit-Guided Path, and I began an amazing journey. After October of 2008, I lost the use of my right arm, and in early 2009, my cognitive abilities were struggling, and treatment options ended. My wife, Susanne, then began doing most of the blog postings, with my review and input whenever possible. I continued to apply the Fact-Based Spirit-Guided Path as the adventure continued. My soul then flew to the Kingdom of God on July 1, 2009. Thanks for your interest in my journey. Craig

Susanne's Perspective

During this entire journey, my wife, Susanne, had an entirely different kind of experience. Initially she added comments to some of my posts describing her experience of the moments I discussed and offerred perspectives on our relationship. In the latter stage of this journey, she is writing the blog, as I am no longer able to do so. I am truly delighted that she is doing so. Susanne and I work together as marriage educators/relationship coaches and she has written many books on preparing for and strengthening marriages so you can count on her comments to be insightful and poignant.

Tuesday, June 23, 2009

The Time of Waiting – June 23, 2009

Sunday was Father’s Day, and Craig was delighted to hear from all his children and his eldest niece. He felt a bit more energetic, sitting up on the side of the bed for two meals. The night then was difficult, with lots of congestion, coughing, and breathing difficulties. This meant little sleep for both of us. Yesterday he was very quiet, sleepy, and minimally responsive. We raised the steroid level yet again, hoping to keep ahead of the tumor growth and swelling.

Hospice and the oncologist evaluated his situation with us yesterday. The vital signs are still about the same, but his lungs are definitely in worse shape. We started a new drug last night to clear out some of the phlegm, so he slept better. Our friend Holly Timberlake also spent the night and took the lead caregiver role, so I slept upstairs in my bed with the door closed and got caught up on sleep a bit. Blessing!

We had study circle here yesterday evening, although Craig wasn’t up to having some of it in his room. The participants still visited him and perked up his spirits though. Our friend Nik also came in during the evening, so he, Holly, and I surrounded Craig’s bed with prayer and love.

I’ve thought a lot lately about the passage below written by Marjorie Morten about Bahíyyih Khánum (daughter of Bahá’u’lláh) and its applicability to and lessons for Craig and I at this time:

“The word mazlúm, which signifies acceptance without complaint, has come to be associated with her name. She was never known to complain or lament. It was not that she made the best of things, but that she found in everything, even in calamity itself, the germs of enduring wisdom. She did not resist the shocks and upheavals of life and she did not run counter to obstacles. She was never impatient. She was as incapable of impatience as she was of revolt. But this was not so much long sufferance as it was quiet awareness of the forces that operate in the hours of waiting and inactivity.

“Always she moved with the larger rhythm, the wider sweep, toward the ultimate goal. Surely, confidently, she followed the circle of her orbit round the Sun of her existence, in that complete acquiescence, that perfect accord, which underlies faith itself.

“So she was in life. And when she came to die her failing faculties threw into sharper and more intense relief the nature of her heart and spirit. It was as if she first let slip away the mechanical devices of the mind and the transient sense perceptions while holding fast to the end the essential elements of her being, unclouded by extremity of bodily weakness and pain. Still her smile spoke strength, serenity, tenderness and the love that is both recognition and bestowal.” (The Bahá’í World, 1932-1934, Page 181-185)

Love,

Susanne

2 comments:

4EverStriving said...

My dear Susanne and Craig,

I just read your recent blog posts after not visiting the site for some time. My heart goes out to you both. I'm sure there are incredibly intense times of stress and sadness in your daily lives right now but your posts are an example of courage and hope for us all.

With love and prayers,
Ellen

RLB said...

Thank you for that amazing quote about Bahiyyih Khanum.